• Blog
  • About
  • Partners
  • Contact
  • Fundraise
Give Now »
Young Survival Coalition logo
    • Learn
      • About Breast Cancer
        • Breast Cancer 101
        • Breast Cancer Statistics
        • Breast Cancer Risk Factors
        • FAQs
      • Living With Breast Cancer
        • Understanding Treatment
        • Quality of Life
        • Fertility and Family Planning
        • Practical Concerns
        • Clinical Trials
      • Metastatic Breast Cancer
        • Metastatic Breast Cancer Diagnosis
        • Metastatic Breast Cancer Treatment
        • Living with Metastatic Breast Cancer
        • Metastatic Clinical Trial Search
        • Metastatic Breast Cancer Resources
      • Resources and Tools
        • Search for Resources
        • Audio/Video Library
        • Educational Materials
        • Partner Resources
      • Co-Survivors
        • Self-Care
        • How To Help
        • Co-Survivor
          Community
      • Research
        • Research Agenda
        • Position Papers
        • Metastatic Survey
      • En Español
    • Connect
      • Find Support Online
        • Virtual Hangouts
        • Private Facebook Groups
      • Meet In Person
        • Local Meetups
        • Conferences
      • Talk One-On-One
    • Get Involved
      • Volunteer
      • Attend A Conference
      • Be An Advocate
      • Fundraise or Host an Event
      • Ride in Tour de Pink
      • Pledge Your Birthday
      • Upcoming Events
      • #TitCheck BCA Campaign
    • Be Inspired
    • Donate
      • Make a Donation
      • Fundraise for YSC
      • All Ways to Give
Young Survival Coalition logo

Mobile Menu

Young Survival Coalition logo
  • Blog
  • About
  • Partners
  • Contact
  • Fundraise
  • Learn
    • About Breast Cancer
      • Breast Cancer 101
      • Breast Cancer Statistics
      • Breast Cancer Risk Factors
      • FAQs
    • Living With Breast Cancer
      • Understanding Treatment
      • Quality of Life
      • Fertility and Family Planning
      • Practical Concerns
      • Clinical Trials
    • Metastatic Breast Cancer
      • Metastatic Breast Cancer Diagnosis
      • Metastatic Breast Cancer Treatment
      • Living with Metastatic Breast Cancer
      • Metastatic Clinical Trial Search
      • Metastatic Breast Cancer Resources
    • Resources and Tools
      • Search for Resources
      • Audio/Video Library
      • Educational Materials
      • Partner Resources
    • Co-Survivors
      • Self-Care
      • How To Help
      • Co-Survivor
        Community
    • Research
      • Research Agenda
      • Position Papers
      • Metastatic Survey
    • En Español
  • Connect
    • Find Support Online
      • Virtual Hangouts
      • Private Facebook Groups
    • Meet In Person
      • Local Meetups
      • Conferences
    • Talk One-On-One
  • Get Involved
    • Volunteer
    • Attend A Conference
    • Be An Advocate
    • Fundraise or Host an Event
    • Ride in Tour de Pink
    • Pledge Your Birthday
    • Upcoming Events
    • #TitCheck BCA Campaign
  • Be Inspired
  • Donate
    • Make a Donation
    • Fundraise for YSC
    • All Ways to Give

Menu: Research Think Tank Metastasis Work Group

  • YSC Research Agenda
  • Clinical Trials
  • Position Papers
  • Metastatic Survey Results
  • Newly Diagnosed Navigator
  • Metastatic Navigator
  • Post-Treatment Navigator
  • Long Term Navigator
Share

Research Think Tank Metastasis

Research think tank for metastasis breast cancer.

The Research Think Tank (RTT) Metastasis Work Group focused on the unique issues and concerns of young women diagnosed with metastatic breast cancer.

The group was composed of advocates:

  • Debbie Molis (chair)
  • Kim Casamassima
  • Stacy Gagas
  • Joy Simha

As well as physicians/researchers:

  • Dr. Silvia Formenti
  • Dr. Generosa Grana
  • Dr. Brunilde Gril
  • Ms. Roz Kleban
  • Dr. Larry Norton
  • Dr. Pat Steeg
  • Dr. Linda Vahdat

Research Priorities

Three of the 19 research priorities recommended by the RTT focused on metastasis. Below we list the priority, indicate any progress made since the RTT and list any open trials of which we are aware related to or focusing on these research priorities.

Do young women have different risk factors to develop MBC than older women, and how can those at greatest risk be identified?

Progress Made: Work In Progress


Recent research updates:

A recent study found a possible mechanism by which postpartum breast cancer is more aggressive and likely to metastasize.

Current research initiatives/studies:

The Metastic Breast Cancer Project (MBC Project) is asking women with metastatic breast cancer to share their tumor specimens and medical records to further research. One research question the Project will examine is what are some factors that lead to developing metastatic breast cancer at a young age.


What causes metastasis in younger women (post-adjuvantly, at presentation, dormancy), and how can it be prevented? Is there a difference between younger and older women?

Progress Made: Thumbs Down


Recent research updates:

A recent study found a possible mechanism by which postpartum breast cancer is more aggressive and likely to metastasize.


How can the psychosocial needs of young women with MBC and their families be better met?

Progress Made: Thumbs Up


Recent research updates:

YSC conducted a large comprehensive survey of the needs (including psychosocial needs) of young women with metastatic breast cancer, and we have presented those results across the globe. Two in-depth publications are forthcoming.

Metastatic Breast Cancer Clinical Trials

YSC has partnered with breastcancertrials.org to develop Metastatic Trial Search, which helps women with metastatic disease find clinical trials that are right for them. Search for a trial for yourself or a loved one. 

Let Us Know What’s Missing

If you believe we are missing a crucial piece of research or have not included a research study which should be here, please contact us!

Related Topics

Research Think Tank Fertility Work Group

The Research Think Tank (RTT) Fertility Work Group focused on unanswered questions relating to a young woman maintaining her fertility throughout breast cancer treatment. It also addressed the use and safety of fertility preservation.
Research Think Tank Pregnancy Work Group

Research Think Tank Pregnancy Work Group

The Research Think Tank (RTT) Pregnancy Work Group focused on unanswered questions relating to all aspects of breast cancer and pregnancy. These included breast cancer treatment during pregnancy, postpartum breast cancer and the safety of pregnancy after breast cancer.
Research Think Tank Quality of Life Work Group

Research Think Tank Quality of Life Work Group

The Research Think Tank (RTT) Quality of Life Work Group focused on unanswered questions about a young woman's life and side effects during and after breast cancer treatment.
Research Think Tank Risk Factors Work Group

Research Think Tank Risk Factors Work Group

The Research Think Tank (RTT) Risk Factors Work Group focused on unanswered questions about what increases the risk of young women developing breast cancer. These risk factors likely differ from what causes the disease in older women.
Research Think Tank Treatment Work Group

Research Think Tank Treatment Work Group

The Research Think Tank (RTT) Treatment Work Group focused on unanswered questions about the most optimal treatment of breast cancer in a young woman and how that treatment may differ from that given to an older woman.

Search for Resources

Audio & Video Library

Educational Materials

Conferences

  • About YSC
  • FAQs
  • Careers
  • Media Center
  • Contact

Young Survival Coalition is a qualified 501(c)(3) tax exempt nonprofit organization dedicated to all young breast cancer survivors and their co-survivor support networks. YSC's EIN is 13-4057685.


405 Lexington Avenue, 26th Floor | New York, NY 10174 | phone: 877.972.1011 | fax: 646.257.3030

© 1998-2023 Young Survival Coalition. All rights reserved. Privacy Policy | Terms of Service | website design by efelle