Research Think Tank Metastasis Work Group
Research Think Tank Metastasis
The Research Think Tank (RTT) Metastasis Work Group focused on the unique issues and concerns of young women diagnosed with metastatic breast cancer.
The group was composed of advocates:
- Debbie Molis (chair)
- Kim Casamassima
- Stacy Gagas
- Joy Simha
As well as physicians/researchers:
- Dr. Silvia Formenti
- Dr. Generosa Grana
- Dr. Brunilde Gril
- Ms. Roz Kleban
- Dr. Larry Norton
- Dr. Pat Steeg
- Dr. Linda Vahdat
Research Priorities
Three of the 19 research priorities recommended by the RTT focused on metastasis. Below we list the priority, indicate any progress made since the RTT and list any open trials of which we are aware related to or focusing on these research priorities.
Do young women have different risk factors to develop MBC than older women, and how can those at greatest risk be identified?
Progress Made: Work In Progress
Recent research updates:
A recent study found a possible mechanism by which postpartum breast cancer is more aggressive and likely to metastasize.
Current research initiatives/studies:
The Metastic Breast Cancer Project (MBC Project) is asking women with metastatic breast cancer to share their tumor specimens and medical records to further research. One research question the Project will examine is what are some factors that lead to developing metastatic breast cancer at a young age.
What causes metastasis in younger women (post-adjuvantly, at presentation, dormancy), and how can it be prevented? Is there a difference between younger and older women?
Progress Made: Thumbs Down
Recent research updates:
A recent study found a possible mechanism by which postpartum breast cancer is more aggressive and likely to metastasize.
How can the psychosocial needs of young women with MBC and their families be better met?
Progress Made: Thumbs Up
Recent research updates:
YSC conducted a large comprehensive survey of the needs (including psychosocial needs) of young women with metastatic breast cancer, and we have presented those results across the globe. Two in-depth publications are forthcoming.
Metastatic Breast Cancer Clinical Trials
YSC has partnered with breastcancertrials.org to develop Metastatic Trial Search, which helps women with metastatic disease find clinical trials that are right for them. Search for a trial for yourself or a loved one.
Let Us Know What’s Missing
If you believe we are missing a crucial piece of research or have not included a research study which should be here, please contact us!
Related Topics
Research Think Tank Fertility Work Group
The Research Think Tank (RTT) Fertility Work Group focused on unanswered questions relating to a young woman maintaining her fertility throughout breast cancer treatment. It also addressed the use and safety of fertility preservation.
Research Think Tank Pregnancy Work Group
The Research Think Tank (RTT) Pregnancy Work Group focused on unanswered questions relating to all aspects of breast cancer and pregnancy. These included breast cancer treatment during pregnancy, postpartum breast cancer and the safety of pregnancy after breast cancer.
Research Think Tank Quality of Life Work Group
The Research Think Tank (RTT) Quality of Life Work Group focused on unanswered questions about a young woman's life and side effects during and after breast cancer treatment.
Research Think Tank Risk Factors Work Group
The Research Think Tank (RTT) Risk Factors Work Group focused on unanswered questions about what increases the risk of young women developing breast cancer. These risk factors likely differ from what causes the disease in older women.