15 Resources for Young Women Living with Metastatic Breast Cancer

Are you a young woman living with stage IV breast cancer? If so, YSC would like you to know there are other women like you out there who get it. Whether you are newly diagnosed or have been living with advanced breast cancer for years, YSC is here to help. In honor of Metastatic Breast Cancer Awareness Day on October 13, we’ve compiled this list of 15 resources for young women facing stage IV breast cancer.

Check back on the 15th of each month to see 15 new facts or tips! Read more about our 15th anniversary lists here. - See more at: http://www.youngsurvival.org/ysc-turns-15

 

October 2013 List #1

The second Tuesday of every month YSC hosts its monthly MetsLink networking call. Facilitated by an experienced social worker, these calls provide an opportunity for young women to connect with, and find support from, other young women living with metastatic breast cancer.

MyLifeLine is a nonprofit organization that encourages cancer patients and caregivers to create free, customized websites to easily keep  family and friends updated. Visitors can also leave messages of love and support in the guestbook .
Released in 2010, YSC’s Metastatic Navigator: A Young Women’s Guide to Living with Metastatic Breast Cancer offers information and resources specifically for young women with metastatic breast cancer, including  tools to help you keep track of your treatment.
Jack & Jill Late Stage Cancer Foundation helps children and their parents spend quality time together in the face of hardships and uncertainties brought on by a late-stage cancer diagnosis .
YSC’s SurvivorLink program allows you to find support from another young woman who understands where you are. Like you, she may be living with state IV breast cancer, raising young children, single, in her 20s, 30s or 40s, partnered with another woman, share the same ethnicity or have experienced similar surgeries or treatment.
In 2012, YSC collaborated with 12 other breast cancer advocacy organizations, alongside Novartis Oncology, to re-launch the Advanced Breast Cancer Community website, which aims to help those living with advanced breast cancer, their family, friends and supporters by offering a clearinghouse of up-to-date information and resources.
YSC's free educational DVD, The Beautiful Eight: Learning to Live with Advanced Breast Cancer, presents an intimate discussion among eight young women diagnosed with metastatic breast cancer. Join them on this journey filled with hope, fear, laughter, anxiety and determination to live life to the fullest
Patient Advocate Foundation (PAF) provides professional case management services to patients with chronic, life-threatening and debilitating illnesses. PAF case managers serve as active liaisons between the patient and his or her insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters as they relate to the diagnosis. Its web site also has a state-by-state financial resource guide.
C4YW, the Annual Conference for Young Women Affected by Breast Cancer, which YSC co-hosts with Living Beyond Breast Cancer (LBBC), offers workshops and in-person networking opportunities for young women living with metastatic disease along with their caregivers. (Will link to audio recording from 2012 Mets workshop once it’s available.)
Living Beyond Breast Cancer’s two-day Annual Conference for Women Living with Metastatic Breast Cancer provides up-to-date information, support and practical resources to help you live well with stage IV breast cancer.
Connect online at your convenience with other young women who are facing the ups and downs of metastatic breast cancer. Ask questions, make friends and travel this road with others who know what it is like.
The Metastatic Breast Cancer Network is a national, independent, nonprofit, patient advocacy group dedicated to the unique concerns of women and men living with metastatic breast cancer. It provides education and information on treatments and coping with the disease.
METAvivor rallies public attention to the urgent needs of the metastatic breast cancer (MBC) community, helps patients find strength through support and purpose, and advocates that 30 percent of breast cancer research funding and support activities be devoted to metastatic breast cancer, to represent the  30 percent of breast cancer patients metastasize.
The National Patient Travel Center (NPATH) provides information about all forms of charitable, long-distance medical transportation and provides referrals to all appropriate sources of help available in the national charitable medical transportation network. Provides “how to get there” assistance for any patient needing to travel to a distant specialized medical facility for evaluation, diagnosis or treatment.
The Cancer Legal Resource Center (CLRC), a national, joint program of the Disability Rights Legal Center and Loyola Law School Los Angeles, provides free and confidential information and resources on cancer-related legal issues to cancer survivors, caregivers, employers, health care professionals, and others coping with cancer.

Did you know?

Released in 2010, YSC’s Metastatic Navigator: A Young Woman’s Guide To Living with Metastatic Breast Cancer, offers information and resources specifically for young women facing stage IV breast cancer, including an organizational system and advice on practical matters to better understand the basics and work with healthcare teams