| Race/Ethnicity: |
| American Indian or Alaska Native (15) |
 |
0.22% |
| Asian or Pacific Islander (198) |
|
2.9% |
| Black (284) |
|
4.15% |
| Hispanic/Latina (242) |
|
3.54% |
| White (4162) |
|
60.87% |
| Other (174) |
|
2.54% |
| No Answer Given (1778) |
|
26% |
| Gender: |
| Female (2068) |
|
30.24% |
| Male (9) |
|
0.13% |
| Transgender (0) |
| 0% |
| No Answer Given (4761) |
|
69.63% |
| Sexual Orientation: |
| Bisexual (34) |
|
0.5% |
| Heterosexual (2400) |
|
35.1% |
| Lesbian/Gay (29) |
|
0.42% |
| Queer (6) |
|
0.09% |
| No Answer Given (4369) |
|
63.89% |
| Relationship Status: |
| Divorced (327) |
|
4.78% |
| Married (3389) |
|
49.56% |
| Partnered (338) |
|
4.94% |
| Separated (87) |
|
1.27% |
| Single (848) |
|
12.4% |
| Widowed (27) |
|
0.39% |
| No Answer Given (1822) |
|
26.65% |
| Age at Diagnosis |
| 18 Years of age and below (13) |
|
0.19% |
| 19 to 25 (214) |
|
3.13% |
| 26 to 30 (785) |
|
11.48% |
| 31 to 35 (1504) |
|
21.99% |
| 36 to 40 (1395) |
|
20.4% |
| No Answer Given (2927) |
|
42.8% |
| How Cancer was Found |
| Felt Lump or Abnormality Accidentally (2806) |
|
41.04% |
| Mammogram (571) |
|
8.35% |
| MRI (35) |
|
0.51% |
| Nipple Discharge (113) |
|
1.65% |
| Clinical Breast Exam performed by OB/GYN (182) |
|
2.66% |
| Partner/Spouse (204) |
|
2.98% |
| Clinical Breast Exam performed by Primary Care Physician (105) |
|
1.54% |
| Regularly Perfomed Breast Self Examination(581) |
|
8.5% |
| Ultrasound(76) |
|
1.11% |
| Other (279) |
|
4.08% |
| No Answer Given (1886) |
|
27.58% |
| Initial Diagnosis Type: |
| DCIS (965) |
|
14.11% |
| Infiltrating Ductal (2481) |
|
36.28% |
| Inflammatory (136) |
|
1.99% |
| Invasive Lobular (393) |
|
5.75% |
| LCIS (80) |
|
1.17% |
| Paget's Disease (18) |
|
0.26% |
| Other (531) |
|
7.77% |
| No Answer (2234) |
|
32.67% |
| Stage at Diagnosis: |
| Stage 0 (350) |
|
5.12% |
| Stage I (1161) |
|
16.98% |
| Stage IIA (1056) |
|
15.44% |
| Stage IIB (806) |
|
11.79% |
| Stage IIIA (566) |
|
8.28% |
| Stage IIIB (262) |
|
3.83% |
| Stage IV (175) |
|
2.56% |
| No Answer Given (2251) |
|
32.92% |
| Tumor Size |
| Less than 2cm (1532) |
|
22.4% |
| 2 to 5cm (843) |
|
12.33% |
| More than 5cm (441) |
|
6.45% |
| No Tumor Detected (333) |
|
4.87% |
| No Answer Given (3689) |
|
53.95% |
| Hormone and Her2 Status |
| Estrogen Receptive Negative (1383) |
|
20.23% |
| Estrogen Receptive Positive (2791) |
|
40.82% |
| HER-2/neu Negative(2064) |
|
30.18% |
| HER-2/neu Positive(1158) |
|
16.93% |
| Progesterone Receptive Negative(1383) |
|
20.23% |
| Progesterone Receptive Positive (1630) |
|
23.84% |
| No Answer Given - (2535) |
|
37.07% |
| Surgery |
| Double Mastectomy (1166) |
|
17.05% |
| Lumpectomy (1984) |
|
29.01% |
| Modified Radical Mastectomy (1353) |
|
19.79% |
| Partial Mastectomy (335) |
|
4.9% |
| Prophylactic Mastectomy (347) |
|
5.07% |
| Other (251) |
|
3.67% |
| No Surgery (331) |
|
4.84% |
| No Answer Given (1071) |
|
15.66% |
| Lymph Node Involvement |
| Yes (2223) |
|
32.51% |
| No (2210) |
|
32.32% |
| No Answer Given (2405) |
|
35.17% |
| Lymph Node Dissection Type |
| Axillary (2556) |
|
37.38% |
| Sentinel (2030) |
|
29.69% |
| None (351) |
|
5.13% |
| No Answer Given (1901) |
|
27.8% |
| Radiation Therapy |
| Yes (2258) |
|
33.02% |
| No (2185) |
|
31.95% |
| No Answer Given (2395) |
|
35.02% |
| Chemotherapy |
| Yes (2819) |
|
41.23% |
| No (821) |
|
12.01% |
| No Answer Given (3198) |
|
46.77% |
| Dose Dense Chemotherapy |
| Yes (1459) |
|
21.34% |
| No (2454) |
|
35.89% |
| No Answer Given (2925) |
|
42.78% |
| Neoadjuvant Chemotherapy |
| Yes (1116) |
|
16.32% |
| No (2698) |
|
39.46% |
| No Answer Given (3024) |
|
44.22% |
| Hormone Therapy |
| Yes (1327) |
|
19.41% |
| No (1942) |
|
28.4% |
| No Answer Given (3569) |
|
52.19% |
| Current Disease Status: |
| Advanced/metastatic (317) |
|
4.64% |
| In treatment (1597) |
|
23.35% |
| Local recurrence (97) |
|
1.42% |
| New primary (137) |
|
2% |
| No evidence of disease (1051) |
|
15.37% |
| No Answer Given (3639) |
|
53.22% |
| Clinical Trial Participation |
| Yes (489) |
|
7.15% |
| No Answer Given (6349) |
|
92.85% |
| Breast Reconstruction |
| Yes (2287) |
|
33.45% |
| No (1283) |
|
18.76% |
| No Answer Given (3268) |
|
47.79% |
| Type of Breast Reconstruction |
| DIEP Flap (207) |
|
3.03% |
| Lat Flap (161) |
|
2.35% |
| Saline implants (583) |
|
8.53% |
| Silicone implants (957) |
|
14% |
| TRAM Flap (475) |
|
6.95% |
| Other (6) |
|
0.09% |
| No Answer (4449) |
|
65.06% |
| Children |
| Average Number of Children Born Pre-Diagnosis: |
1.1 |
| Average number of Children Born Post-Diagnosis: |
0.4 |
| None: (1644) |
|
24.04% |
| No Answer Given (2044) |
|
29.89% |
| Diagnosed During Pregnancy |
| Yes (209) |
|
3.06% |
| No (4257) |
|
62.26% |
| No Answer (2372) |
|
34.69% |
| Difficulty Conceiving After Breast Cancer Diagnosis |
| Yes (244) |
|
3.57% |
| No (123) |
|
1.8% |
| Not applicable (4053) |
|
59.27% |
| No Answer (2418) |
|
35.36% |
| Currently Trying to Conceive |
| Yes (143) |
|
2.09% |
| No (4407) |
|
64.45% |
| No Answer (2288) |
|
33.46% |
| Currently Pregnant |
| Yes (68) |
|
0.99% |
| No (4764) |
|
69.67% |
| No Answer (2006) |
|
29.34% |
| Adopted Children Post-Diagnosis |
| Yes (46) |
|
0.67% |
| No (4441) |
|
64.95% |
| No Answer (2351) |
|
34.38% |
| Premature Menopause |
| Yes (1795) |
|
26.25% |
| No (2050) |
|
29.98% |
| No Answer Given (2993) |
|
43.77% |
| Family Members Diagnosed with Breast Cancer |
| Self (2477) |
|
36.22% |
| Brother (177) |
|
2.59% |
| Sister (127) |
|
1.86% |
| Mother (617) |
|
9.02% |
| Father (20) |
|
0.29% |
| Either of Mother's Parents (761) |
|
11.13% |
| Either of Father's Parents (630) |
|
9.21% |
| Cousin(s) (332) |
|
4.86% |
| Daughter (101) |
|
1.48% |
| Son (0) |
| 0% |
| Other (739) |
|
10.81% |
| No Answer (857) |
|
12.53% |
| Any of the Above Diagnosed Before Age 50 |
| Yes (2924) |
|
42.76% |
| No (888) |
|
12.99% |
| No Answer Given (3026) |
|
44.25% |
| Family Members Diagnosed with Cancer other than Breast Cancer |
| Self (244) |
|
3.57% |
| Brother (79) |
|
1.16% |
| Sister (124) |
|
1.81% |
| Mother (415) |
|
6.07% |
| Father (659) |
|
9.64% |
| Either of Mother's Parents (1201) |
|
17.56% |
| Either of Father's Parents (998) |
|
14.59% |
| Cousin(s) (430) |
|
6.29% |
| Daughter (5) |
|
0.07% |
| Son (5) |
|
0.07% |
| Other (613) |
|
8.96% |
| No Answer (2065) |
|
30.2% |
| Any of the Above Diagnosed Before Age 50 |
| Yes (1383) |
|
20.23% |
| No (1617) |
|
23.65% |
| No Answer Given (3838) |
|
56.13% |
| Family Member Has Tested Positive for a Genetic Mutation or Hereditary Cancer Syndrome |
| Yes (336) |
|
4.91% |
| No (2928) |
|
42.82% |
| No Answer Given (3574) |
|
52.27% |
| Referred for Genetic Counseling or Testing |
| Yes (2269) |
|
33.18% |
| No (1271) |
|
18.59% |
| No Answer Given (3298) |
|
48.23% |
| Chose to be tested for Genetic Mutation or Hereditary Cancer Syndrome |
| Yes (2269) |
|
33.18% |
| No (1271) |
|
18.59% |
| No Answer Given (3298) |
|
48.23% |
| Specialty of the Practitioner that Performed Genetic Testing |
| Certified Genetic Counselor (1270) |
|
18.57% |
| Medical Oncologist (450) |
|
6.58% |
| Nurse (120) |
|
1.75% |
| Other Physician (46) |
|
0.67% |
| Surgeon (184) |
|
2.69% |
| No Genetic Counseling Received (1138) |
|
16.64% |
| No Answer Given (3630) |
|
53.09% |
| Results of Hereditary Breast/ Ovarian Cancer Syndrome (BRCA 1/2) Test |
| Negative (1018) |
|
14.89% |
| Positive (205) |
|
3% |
| Don't Know (205) |
|
3% |
| No Answer Given (5615) |
|
82.11% |
| Results of Cowden Syndrome (PTEN) Test |
| Negative (115) |
|
1.68% |
| Positive (115) |
|
1.68% |
| Don't Know (385) |
|
5.63% |
| No Answer Given (6338) |
|
92.69% |
| Results of Li Fraumeni (TP53) Test |
| Negative (97) |
|
1.42% |
| Positive (97) |
|
1.42% |
| Don't Know (381) |
|
5.57% |
| No Answer Given (6360) |
|
93.01% |
| Actions Taken Based on Family History, Genetic Counseling or Testing |
| Enrollment in a high risk clinic (69) |
|
1.01% |
| Monthly breast self-exams/breast awareness (921) |
|
13.47% |
| Prophylactic mastectomy (459) |
|
6.71% |
| Prophylactic oophorectomy (298) |
|
4.36% |
| Regular blood tests (CA125, etc) (508) |
|
7.43% |
| Regular breast MRI's (315) |
|
4.61% |
| Regular breast ultrasounds (287) |
|
4.2% |
| Regular colonoscopy (156) |
|
2.28% |
| Regular mammograms (807) |
|
11.8% |
| Regular vaginal ultrasounds (248) |
|
3.63% |
| No Answer Given (2770) |
|
40.51% |
