| Race/Ethnicity: |
| American Indian or Alaska Native (15) |
 |
0.21% |
| Asian or Pacific Islander (205) |
|
2.9% |
| Black (294) |
|
4.16% |
| Hispanic/Latina (246) |
|
3.48% |
| White (4294) |
|
60.79% |
| Other (180) |
|
2.55% |
| No Answer Given (1845) |
|
26.12% |
| Gender: |
| Female (2071) |
|
29.32% |
| Male (8) |
|
0.11% |
| Transgender (0) |
| 0% |
| No Answer Given (4985) |
|
70.57% |
| Sexual Orientation: |
| Bisexual (37) |
|
0.52% |
| Heterosexual (2532) |
|
35.84% |
| Lesbian/Gay (31) |
|
0.44% |
| Queer (6) |
|
0.08% |
| No Answer Given (4458) |
|
63.11% |
| Relationship Status: |
| Divorced (337) |
|
4.77% |
| Married (3498) |
|
49.52% |
| Partnered (354) |
|
5.01% |
| Separated (89) |
|
1.26% |
| Single (869) |
|
12.3% |
| Widowed (27) |
|
0.38% |
| No Answer Given (1890) |
|
26.76% |
| Age at Diagnosis |
| 18 Years of age and below (14) |
|
0.2% |
| 19 to 25 (222) |
|
3.14% |
| 26 to 30 (809) |
|
11.45% |
| 31 to 35 (1539) |
|
21.79% |
| 36 to 40 (1448) |
|
20.5% |
| No Answer Given (3032) |
|
42.92% |
| How Cancer was Found |
| Felt Lump or Abnormality Accidentally (2889) |
|
40.9% |
| Mammogram (590) |
|
8.35% |
| MRI (37) |
|
0.52% |
| Nipple Discharge (117) |
|
1.66% |
| Clinical Breast Exam performed by OB/GYN (188) |
|
2.66% |
| Partner/Spouse (209) |
|
2.96% |
| Clinical Breast Exam performed by Primary Care Physician (109) |
|
1.54% |
| Regularly Perfomed Breast Self Examination(604) |
|
8.55% |
| Ultrasound(79) |
|
1.12% |
| Other (286) |
|
4.05% |
| No Answer Given (1956) |
|
27.69% |
| Initial Diagnosis Type: |
| DCIS (996) |
|
14.1% |
| Infiltrating Ductal (2561) |
|
36.25% |
| Inflammatory (139) |
|
1.97% |
| Invasive Lobular (406) |
|
5.75% |
| LCIS (80) |
|
1.13% |
| Paget's Disease (19) |
|
0.27% |
| Other (551) |
|
7.8% |
| No Answer (2312) |
|
32.73% |
| Stage at Diagnosis: |
| Stage 0 (362) |
|
5.12% |
| Stage I (1206) |
|
17.07% |
| Stage IIA (1090) |
|
15.43% |
| Stage IIB (828) |
|
11.72% |
| Stage IIIA (577) |
|
8.17% |
| Stage IIIB (264) |
|
3.74% |
| Stage IV (177) |
|
2.51% |
| No Answer Given (2338) |
|
33.1% |
| Tumor Size |
| Less than 2cm (1561) |
|
22.1% |
| 2 to 5cm (878) |
|
12.43% |
| More than 5cm (452) |
|
6.4% |
| No Tumor Detected (348) |
|
4.93% |
| No Answer Given (3825) |
|
54.15% |
| Hormone and Her2 Status |
| Estrogen Receptive Negative (1425) |
|
20.17% |
| Estrogen Receptive Positive (2880) |
|
40.77% |
| HER-2/neu Negative(2136) |
|
30.24% |
| HER-2/neu Positive(1189) |
|
16.83% |
| Progesterone Receptive Negative(1429) |
|
20.23% |
| Progesterone Receptive Positive (1682) |
|
23.81% |
| No Answer Given - (2627) |
|
37.19% |
| Surgery |
| Double Mastectomy (1204) |
|
17.04% |
| Lumpectomy (2055) |
|
29.09% |
| Modified Radical Mastectomy (1381) |
|
19.55% |
| Partial Mastectomy (341) |
|
4.83% |
| Prophylactic Mastectomy (352) |
|
4.98% |
| Other (261) |
|
3.69% |
| No Surgery (346) |
|
4.9% |
| No Answer Given (1124) |
|
15.91% |
| Lymph Node Involvement |
| Yes (2268) |
|
32.11% |
| No (2297) |
|
32.52% |
| No Answer Given (2499) |
|
35.38% |
| Lymph Node Dissection Type |
| Axillary (2648) |
|
37.49% |
| Sentinel (2081) |
|
29.46% |
| None (361) |
|
5.11% |
| No Answer Given (1974) |
|
27.94% |
| Radiation Therapy |
| Yes (2321) |
|
32.86% |
| No (2256) |
|
31.94% |
| No Answer Given (2487) |
|
35.21% |
| Chemotherapy |
| Yes (2916) |
|
41.28% |
| No (861) |
|
12.19% |
| No Answer Given (3287) |
|
46.53% |
| Dose Dense Chemotherapy |
| Yes (1493) |
|
21.14% |
| No (2517) |
|
35.63% |
| No Answer Given (3054) |
|
43.23% |
| Neoadjuvant Chemotherapy |
| Yes (1142) |
|
16.17% |
| No (2768) |
|
39.18% |
| No Answer Given (3154) |
|
44.65% |
| Hormone Therapy |
| Yes (1377) |
|
19.49% |
| No (2009) |
|
28.44% |
| No Answer Given (3678) |
|
52.07% |
| Current Disease Status: |
| Advanced/metastatic (324) |
|
4.59% |
| In treatment (1640) |
|
23.22% |
| Local recurrence (98) |
|
1.39% |
| New primary (152) |
|
2.15% |
| No evidence of disease (1102) |
|
15.6% |
| No Answer Given (3748) |
|
53.06% |
| Clinical Trial Participation |
| Yes (506) |
|
7.16% |
| No Answer Given (6558) |
|
92.84% |
| Breast Reconstruction |
| Yes (2375) |
|
33.62% |
| No (1333) |
|
18.87% |
| No Answer Given (3356) |
|
47.51% |
| Type of Breast Reconstruction |
| DIEP Flap (213) |
|
3.02% |
| Lat Flap (164) |
|
2.32% |
| Saline implants (606) |
|
8.58% |
| Silicone implants (993) |
|
14.06% |
| TRAM Flap (484) |
|
6.85% |
| Other (6) |
|
0.08% |
| No Answer (4598) |
|
65.09% |
| Children |
| Average Number of Children Born Pre-Diagnosis: |
1.1 |
| Average number of Children Born Post-Diagnosis: |
0.4 |
| None: (1703) |
|
24.11% |
| No Answer Given (2116) |
|
29.95% |
| Diagnosed During Pregnancy |
| Yes (217) |
|
3.07% |
| No (4390) |
|
62.15% |
| No Answer (2457) |
|
34.78% |
| Difficulty Conceiving After Breast Cancer Diagnosis |
| Yes (257) |
|
3.64% |
| No (125) |
|
1.77% |
| Not applicable (4174) |
|
59.09% |
| No Answer (2508) |
|
35.5% |
| Currently Trying to Conceive |
| Yes (153) |
|
2.17% |
| No (4540) |
|
64.27% |
| No Answer (2371) |
|
33.56% |
| Currently Pregnant |
| Yes (70) |
|
0.99% |
| No (4906) |
|
69.45% |
| No Answer (2088) |
|
29.56% |
| Adopted Children Post-Diagnosis |
| Yes (46) |
|
0.65% |
| No (4580) |
|
64.84% |
| No Answer (2438) |
|
34.51% |
| Premature Menopause |
| Yes (1840) |
|
26.05% |
| No (2120) |
|
30.01% |
| No Answer Given (3104) |
|
43.94% |
| Family Members Diagnosed with Breast Cancer |
| Self (2572) |
|
36.41% |
| Brother (177) |
|
2.51% |
| Sister (130) |
|
1.84% |
| Mother (635) |
|
8.99% |
| Father (22) |
|
0.31% |
| Either of Mother's Parents (786) |
|
11.13% |
| Either of Father's Parents (645) |
|
9.13% |
| Cousin(s) (346) |
|
4.9% |
| Daughter (101) |
|
1.43% |
| Son (0) |
| 0% |
| Other (778) |
|
11.01% |
| No Answer (872) |
|
12.34% |
| Any of the Above Diagnosed Before Age 50 |
| Yes (3014) |
|
42.67% |
| No (912) |
|
12.91% |
| No Answer Given (3138) |
|
44.42% |
| Family Members Diagnosed with Cancer other than Breast Cancer |
| Self (254) |
|
3.6% |
| Brother (80) |
|
1.13% |
| Sister (125) |
|
1.77% |
| Mother (424) |
|
6% |
| Father (681) |
|
9.64% |
| Either of Mother's Parents (1242) |
|
17.58% |
| Either of Father's Parents (1028) |
|
14.55% |
| Cousin(s) (452) |
|
6.4% |
| Daughter (5) |
|
0.07% |
| Son (5) |
|
0.07% |
| Other (637) |
|
9.02% |
| No Answer (2131) |
|
30.17% |
| Any of the Above Diagnosed Before Age 50 |
| Yes (1433) |
|
20.29% |
| No (1672) |
|
23.67% |
| No Answer Given (3959) |
|
56.04% |
| Family Member Has Tested Positive for a Genetic Mutation or Hereditary Cancer Syndrome |
| Yes (348) |
|
4.93% |
| No (3036) |
|
42.98% |
| No Answer Given (3680) |
|
52.1% |
| Referred for Genetic Counseling or Testing |
| Yes (2370) |
|
33.55% |
| No (1306) |
|
18.49% |
| No Answer Given (3388) |
|
47.96% |
| Chose to be tested for Genetic Mutation or Hereditary Cancer Syndrome |
| Yes (2370) |
|
33.55% |
| No (1306) |
|
18.49% |
| No Answer Given (3388) |
|
47.96% |
| Specialty of the Practitioner that Performed Genetic Testing |
| Certified Genetic Counselor (1321) |
|
18.7% |
| Medical Oncologist (472) |
|
6.68% |
| Nurse (121) |
|
1.71% |
| Other Physician (47) |
|
0.67% |
| Surgeon (193) |
|
2.73% |
| No Genetic Counseling Received (1178) |
|
16.68% |
| No Answer Given (3732) |
|
52.83% |
| Results of Hereditary Breast/ Ovarian Cancer Syndrome (BRCA 1/2) Test |
| Negative (1063) |
|
15.05% |
| Positive (212) |
|
3% |
| Don't Know (212) |
|
3% |
| No Answer Given (5789) |
|
81.95% |
| Results of Cowden Syndrome (PTEN) Test |
| Negative (126) |
|
1.78% |
| Positive (126) |
|
1.78% |
| Don't Know (401) |
|
5.68% |
| No Answer Given (6537) |
|
92.54% |
| Results of Li Fraumeni (TP53) Test |
| Negative (109) |
|
1.54% |
| Positive (109) |
|
1.54% |
| Don't Know (397) |
|
5.62% |
| No Answer Given (6558) |
|
92.84% |
| Actions Taken Based on Family History, Genetic Counseling or Testing |
| Enrollment in a high risk clinic (70) |
|
0.99% |
| Monthly breast self-exams/breast awareness (951) |
|
13.46% |
| Prophylactic mastectomy (470) |
|
6.65% |
| Prophylactic oophorectomy (301) |
|
4.26% |
| Regular blood tests (CA125, etc) (522) |
|
7.39% |
| Regular breast MRI's (321) |
|
4.54% |
| Regular breast ultrasounds (294) |
|
4.16% |
| Regular colonoscopy (161) |
|
2.28% |
| Regular mammograms (831) |
|
11.76% |
| Regular vaginal ultrasounds (254) |
|
3.6% |
| No Answer Given (2889) |
|
40.9% |
