Thoughts on World Cancer Day

WCDToday is World Cancer Day (http://www.worldcancerday.org/), which I have to be honest, I don’t know if I really get. While I love the idea of dispelling the myths around the disease, I don’t know if we need a special day to do that. Maybe if on this day everyone that has been diagnosed with cancer was given the day off from work – now that would be interesting and worth celebrating.

Many different groups hope that this day will be a day to call attention to the disease itself – but I would be surprised if there was an adult on this planet that has not heard of cancer – awareness of the disease is not going to stop people from dying.

I think that on World Cancer Day two things should happen – the media should dedicate their coverage to advances in science to beating the disease and there should be a world-wide competition to finding a cure.  Oh … And all survivors should take the day off from work.

As a person who has heard the words “you have cancer” – I don’t need a special day to remind me – I remember every day while I battle side effects of treatment and support friends and family who are also survivors.

What about all of those people in the world that have cancer and don’t have access to modern pain medicine and treatment? What about those small organizations that are struggling to serve underserved populations that have been forgotten all over the world? What about all the children that have to face the disease before they have even learned to walk?

World Cancer Day was created as a worldwide effort to dispel the myths about cancer but without the active involvement of every person on the planet to stand up and demand equal and fair care and more importantly a cure – I am not sure what a single day will accomplish.

You want to dispel a myth??? When you are diagnosed with cancer – it is not a death sentence. Every single person on this planet will die some day – and for those of us who have heard the world cancer by our doctor – all that makes us different is that the illusion of immortality is no longer distracting us.

I say on World Cancer Day you hug a survivor and take a pledge to enjoy the day we have all been given to live. Oh … and give all survivors the day off work!

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A Survivor’s Effort to Avoid Toxic Chemicals in Everyday Life

BPA FreeWhen I got diagnosed with breast cancer during the final month of my first pregnancy, hormones took on a new importance in my life. My doctors worried the estrogen flooding my body during pregnancy had fueled my tumor’s growth. They warned that chemo might shut down my body’s reproductive hormones and my ability to have another child.

Two years later, I began monitoring those hormones and was overjoyed when I learned I was pregnant with a little girl. Now, 10 years after my diagnosis, I am considering having my ovaries taken out in order to remove these engines of estrogen production—even though I know I can’t take hormone therapy to help me through the throes of menopause.
I work hard to stay healthy and protect myself from cancer triggers. But through my work at an environmental organization, I have learned not all hormone-related threats come from inside our bodies. Some come from chemicals found in the air we breathe, the water we drink, and the consumer products we use every day.  Many of these chemicals are known to mimic estrogen, and disrupt the development of breast tissue. Almost none of them are regulated by the government.

This has potentially grave consequences for women and girls. Mammary glands are the only body part that changes structure over time, and this extended development is guided by hormones. When toxic chemicals disrupt this delicate form of communication, the breast can get the wrong message and start restructuring in ways that lay the groundwork for cancer.

Take Bisphenol A (BPA). BPA is a chemical found in plastic bottles, canned foods and baby toys. It is so common that more than 90 percent of Americans have residues of the chemical in their bodies, according to the Centers for Disease Control. It is also a synthetic form of estrogen and has been shown to cause normal breast cells to behave like cancer cells and has been linked to prostate cancer, lower sperm counts, and early puberty.

Polycyclic aromatic hydrocarbons (PAHs) are another group of chemicals known to mimic estrogen.  PAHs are commonly found in soot—air pollution from burning coal, oil and gasoline. Some PAHs have been shown to cause mammary tumors in rats and to interfere with DNA repair in cells. And several epidemiological studies have linked PAH exposure to increased risk for breast cancer in women.

Similar estrogenic chemicals are found in pesticides and weed killers such as atrazine. Atrazine was banned in the European Union because of its potential to harm human health, but more than 75 million pounds are used in the United States every year and atrazine is frequently found in drinking water during growing seasons. Atrazine is a known hormone disruptor, and some studies have linked it to increased risks for breast cancer.

As someone who avoids eating tofu in order to reduce my exposure to estrogen, I find it alarming we are exposed to so many sources of synthetic hormones every day. But the more we learn, the more we can protect ourselves. We can buy organic produce to avoid pesticides like atrazine. We can use cosmetics free of toxic preservatives. And we can heat and store our food in glass instead of plastic. The Breast Cancer Fund has a terrific set of tips for avoiding hazardous chemicals.

But shopping alone can’t reduce all the risk, since we don’t always know where these chemicals may be lurking. There are more than 80,000 chemicals used in the United States, but the Environmental Protection Agency has required only 200 of them to be tested and only 5 to be regulated. It’s time the government stepped in and demanded manufacturers prove their ingredients pose no harm.

I will never know if toxic chemicals contributed to my tumor. But I do know that if reducing the amount of these chemicals in our lives will shield other women from the anguish of this disease, we must start demanding companies clean up their act now.

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Categories: Guest Bloggers

Upcoming Webinar – Rights in the Workplace: How To Navigate my Breast Cancer Diagnosis

Click to enlarge.

Click to enlarge.

Maintaining a regular work schedule after a breast cancer diagnosis can create a sense of normalcy and purpose for many young women. However, learning and understanding your rights in the workplace may feel confusing and unclear. In YSC’s upcoming webinar, S. Beth Stephens, Staff Attorney for the Breast Cancer Legal Project at the Atlanta Legal Aid Society, Inc., will explore these issues and many more. Ms. Stephens previously guest blogged for YSC on the topic of Navigating Breast Cancer and Employment.

Webinar Details:

Title: Rights in the Workplace: How to Navigate My Breast Cancer Diagnosis

Thursday, January 31, 2013: 7:30-8:30 p.m. EST

Registration link:

https://www1.gotomeeting.com/register/740114832

Speaker: S. Beth Stephens, Attorney at Law; Atlanta Legal Aid Society

This webinar will cover a basic overview of the Family Medical Leave Act (FMLA) and the Americans with Disabilities Act (ADA). Additionally, we will answer the questions:

- What are my rights and the rights of my caregiver to take time off of work?
- What do I have to disclose to an employer about my breast cancer diagnosis
- What are my rights when returning to work?
- How do I ask for accommodations to be able to do my job after a breast cancer diagnosis?

 

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Categories: Guest Bloggers

YSC Announces State Leader Program

We are 1 YSC.

We are 1 YSC.

It brings me great pleasure to announce the rollout of YSC’s State Leader Program, along with the names of our new State Leaders. This is a big deal!!

The State Leader program will link a regional network of experienced volunteer leaders who are committed to YSC’s mission together for the very first time!

As YSC becomes 1 YSC – State Leaders will act as THE link between YSC’s local and statewide communities (survivors, volunteers, & health care providers) and the YSC Regional Field Manager staff. Their contributions will also include identifying state resources, joining other key leaders on a Regional Leader Council, and contributing to outreach, education and awareness activities throughout their region.

These seasoned volunteers have shown an outstanding commitment to YSC’s mission. Their experience, skills and talents will have a significant impact on helping YSC reach even more young woman diagnosed with breast cancer in their region.

Please join me in congratulating these remarkable women and thanking them for all they do – each and every day – to ensure no young woman affected by breast cancer ever has to feel alone.

Their leadership and dedication to YSC’s mission is worthy of extraordinary recognition – since without committed volunteers like these individuals – we would be unable to support as many young women with breast cancer as we do! THANK YOU!!!

SOUTH MIDWEST WEST NORTHEAST
Texas Michigan California New Hampshire
Michelle Piña Amos Maureen Parrish Lissette Averhoff Jennifer Beaudet
Sandy Castillo Ellen Schwerin
Missouri Amanda Nixon Pennsylvania
South Carolina Kristin Ainsworth Rose Kristin Graham Jodi Inverso
Libby Seabrook Brown Angela McCourt Kim Hagerich
Shari Payne Kaple Wisconsin
Laura Kuecker Washington New Jersey
Florida Judy Haley Diana Di Mare
Linda Larkin Wendy Keating Victoria St. Martin
Karen Lawson
Georgia New York
Janice  Weaver Arizona Paulina Kashirsky
Felicia  Mahone Mikala Edwards Kate McGough
Mindy Carpenter
District of Columbia
Erin Price
Devin Boerm
Ohio
Melissa Richardson
Julie Klaski
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Congratulations Stacy and Lori!

YSC turns 15 years old this year!!! We will be celebrating throughout the entire year to recognize the hard work of SO many dedicated volunteers and staff. I feel honored to be able to take part in these acknowledgements, especially since they symbolize the hard work and dedication of so many young women with breast cancer across the country. The amazing volunteers and survivors in San Diego played a part … as did women in Atlanta … Duluth … Kansas City … Philadelphia … the list goes on … and on! There are so many people to thank and identify – we need an entire year to do it!

To kick off the festivities, I would like to pay homage to two spectacular women … Stacy Lewis and Lori Atkinson. Seven years ago this month, both of these outstanding women began their employment with YSC. As the organization turns 15 and we begin the year by commemorating this anniversary, we also start the year by hailing the achievements and long-standing tenure of these outstanding professionals. They have now BOTH been on staff longer than any other employees in YSC’s history.

That is something to celebrate!

 

Stacy Lewis, CHES, Chief Program Officer and Deputy Chief Executive

Stacy Lewis, CHES, Chief Program Officer and Deputy Chief Executive

Stacy Lewis started as YSC’s first Program Director on staff and she’s been leading us to greatness ever since! Stacy’s outgoing personality and brilliant mind is a driving force behind YSC’s solid reputation for delivering truthful and accurate data and materials. Stacy has built relationships with healthcare professionals, researchers and organizations that have strengthened YSC’s ability to support young women with breast cancer across the country. A few years after she joined YSC, Stacy was promoted to VP of Programming to take advantage of her strategic planning and management skills, especially with regard to the management of C4YW – the largest conference dedicated to young women with breast cancer in the world. One of the first things I noticed when I was hired as YSC’s CEO was Stacy’s incredible knowledge of science and survivorship issues – and I promptly promoted her to Chief Program Officer/Deputy Chief Executive. I truly believe that YSC is a smarter and better organization due to Stacy’s contributions. It is a great honor to be able to highlight her seven years of service to YSC. Thank you, Stacy!!!

 

 

Lori Atkinson, Chief Community Officer

Lori Atkinson, Chief Community Officer

Lori Atkinson began volunteering with YSC in 2000, so her relationship with YSC actually began 13 years ago. Before she joined YSC’s staff, Lori served as its Volunteer Chair for Central Indiana, where she worked hard to build YSC’s reputation and reach young women in her local community. In 2006, Lori was hired as YSC’s first Affiliate Manager and she diligently supported women around the country who were a part of an affiliate. There are very few YSC members who don’t know Lori – if you’re acquainted with her, I’m sure you know she’s one of the kindest and hardest working people there is. A few years after that, Lori was promoted to Affiliate Director of Development to foster YSC’s growing affiliate structure to help more young women with breast cancer throughout the United States. In my first year working at YSC, Lori and I worked very closely together to analyze the current affiliate model and determine how we could strengthen it. Everything Lori does focuses on the critical issue of how YSC can better reach and support young women affected by breast cancer. I know I can rely on her to always put our volunteers and survivors first in everything she does … always! In 2012, I was proud to promote Lori to Chief Community Officer of YSC. Her commitment to both YSC and the success of our volunteer programs is exceptional. I thank my lucky stars that back in 2000 YSC was there to not only support Lori in her journey as a young survivor, but also keep her actively engaged with YSC 13 years later (WOW!!!). Thank you, Lori!!!

 

These two women are the brains of the programmatic work that YSC is well known for. They both care deeply about our community and work tirelessly to ensure that every young women diagnosed with breast cancer in the U.S. knows we are here and that she’s a part of our family.

As we embark upon our 15 year anniversary today, please join me in thanking and acknowledging Stacy Lewis and Lori Atkinson for seven years of service to YSC. If one of them has touched your life or done something special for you during the past seven years, please consider leaving a comment to express your appreciation.

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