YSC 15th Anniversary Lists - July 2013

YSC was founded 15 years ago by three young survivors, who felt discouraged by the lack of resources available to them. This month, we’re honoring how far we've come as a result of their efforts to bring young adult oncology issues to the forefront by highlighting 15 resources for those affected by cancer.

Check back on the 15th of each month to see 15 new facts or tips! Read more about our 15th anniversary lists here.

 

 

July
2013

15 Resources For Young Women

What’s Next? A Young Woman’s Post-Treatment Navigator, the latest in YSC’s series, is a free comprehensive guidebook for women who have completed their initial breast cancer treatment. Topics covered what to expect from long-term side effects like chemobrain, sex and intimacy, fertility, and lymphedema. It also includes worksheets to document summaries and create survivorship care plans. 
 
Introduced nationally in 2009, YSC’s Newly Diagnosed Resource Kit (NDRK) was developed to empower you as you navigate complicated medical terminology, various multiple treatment options, financial and insurance questions and a whirlwind schedule of tests and appointments.
 
YSC’s Online Community Bulletin Boards provide a place for young women affected by breast cancer to connect at any time of the day or night – even from a smartphone. New features include a Member Map, Online Chat and Calendar along with more expanded and forums.
 
YSC regularly hosts webinars on topics like Beyond the Hot Flash: What to Know About Early Menopause, Workplace Rights, Dating, Healthcare Reform, and Metastatic Breast Cancer. Past webinars are available on YSC’s Transcripts/Audio Files webpage.
 
YSC Face 2 Face Networks (YSC F2F) provide in-person support and connections for Young Women Affected by Breast Cancer (YWABC) in their local communities.
 
Founded in 1944, CancerCare is a national nonprofit organization delivering free professional counseling, educational programs and financial assistance to anyone affected by cancer, including those family, friends and the bereaved. To speak with a CancerCare social worker, call 800.813.HOPE (4673).
 
Founded in 2003, the HealthWell Foundation is an independent, non-profit organization providing financial assistance to insured patients living with chronic and life-altering illnesses to help them afford their medical treatments. It provides assistance with payments for prescription drug copayments, coinsurance, deductibles and other selected out-of-pocket costs.
 
American Cancer Society offers a number of programs including Hope Lodge, Road to Recovery, Taking Charge of Money Matters and Tender Loving Care.
 
Fertile Hope is a LIVESTRONG initiative providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility.
 
Cancer and Careers empowers and educates people with cancer to thrive at work by providing expert advice, interactive tools and educational events. Through a comprehensive website, free publications, career coaching, and a series of support groups and educational seminars.
 
NeedyMeds provides links to pharmaceutical companies and other organizations that have patient assistance programs.
 
First Descents takes young adult cancer fighters(ages 18 to 39) on free outdoor adventure experience designed to empower them to climb, paddle and surf beyond their diagnosis, defy their cancer, reclaim their lives and connect with others doing the same.
 
American Psychosocial Oncology Society Helpline finds local counseling services for people with cancer and their caregivers. 866.APOS.4.HELP.
 
Pure Romance carries an exclusive line of lubricants and bedroom accessories including products specifically for women affected by breast cancer. Its Sensuality, Sexuality, Survival program focuses on helping breast cancer survivors recapture their sexuality.  
 
MyOncofertility.org supplies information on the potential effect of cancer and treatment on fertility, preservation options and resources for discussing these issues with a doctor. It also has a physician finder feature to identity physicians in your area. 
 

 

Did You Know?

A 2010 survey conducted by Young Survival Coalition (YSC) found that 86 percent of its post-treatment population did not have a survivorship care plan. To bridge this gap and help young breast cancer survivors navigate life after treatment YSC developed What’s Next? A Young Woman’s Post-Treatment Navigator.

15th Anniversary Lists

In 2013, Young Survival Coalition celebrates 15 years of supporting women 40 and under affected by breast cancer. In the tradition of its founders, YSC pioneers research, information about treatment options and helps with the challenges and frustrations young women face when diagnosed. As the first organization to recognize these needs, YSC will be highlighting its accomplishments as well as the cancer community’s each month in a new "15 Facts" or "15 Tips" list. Please check back each month to learn something new.